The UK Government Has Been Killing Disabled People, A New Government Must Stop This And Make Things Right

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Ok, I wrote this a couple of weeks ago while thinking about the roundtable meeting with John McDonnell and saved it away, I think it needs putting out there now, because clearly even people supposedly aware of what is going on seem to not understand what it is like to be a target of government hostility. This is what a future new government needs to do to make things right and respect disabled people’s rights and lives and to move forward.

1. People have a form of trauma from their dealing with the DWP and contractors over the last decade, we are survivors of state sponsored abuse, that needs recognising and help given.

2. To that end there needs to be a formal state led process of truth and reconciliation and part of that will entail key senior command people face trial, thousands of lives have been taken here and that trauma cannot be dealt with without redress, forgiveness can only happen after an oppressor accepts what they have done and that it was wrong. There is no place for sanctions in a social security safety net. It should also be noted that professional bodies (General Medical Council, Nursing & Midwifery Council & Health and Care Professions Council) have sought to protect their members from complaints and remedying their institutional bias needs to be part of this process. The Coroner System also needs to be changed so the threshold of determining suicide and causes is no longer to a criminal standard and that coroners warnings to government about lethal effects of policy have statutory force and cannot be hidden or dismissed. As for Corporate Charities or Disability Rights UK, when push came to shove, they mostly failed us. If they want to share in this way forward they have to re-orient how they represent the people they supposedly are constituted to help.

3. Long term the DWP is so institutionally dysfunctional it has no future in a civilised society, we need a new Ministry combining Social Security and Social Care closely allied to Health (if not also Health) DHSS, imagine such a thing! And firmly rooted in human rights and the social model. So not Universal Credit.

4. More directly about the future, there needs to be a transition plan so that the Friday morning when Labour walk into Downing Street, civil servants and government lawyers are tasked with ending the contracts with Atos, Capita & Maximus. On this we are happy to provide testimony to show all three are catastrophically in breach of their contacts and deserve no exit clause payments, in fact they deserve prosecutions. The assessments need to be paused, interim payments continued and an emergency process in place to deal with ongoing claims and new claims while new legislation is debated and passed, ideally seeing NHS professionals and the claimants own support network co-produce an assessed support plan that is the gateway to benefits. The era of the fear of the brown envelope must end immediately.

Unsupported Work To Provide For No Family – The Work Cure?

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“Work is good for you” is a mantra inflicted on everyone of working age including mental health service users. I don’t think the reality is straightforward and work can feel perilous when it is insecure, (zero hours contracts being the clearest example), low paid, low skilled with employers whose priority isn’t to ‘promote staff mental wellbeing’. I do work full-time though didn’t achieve regular paid work until I was 33 years of age. Please bear with me as I explain this statement since I feel I need to justify it in case anyone assumes I was lazy or went travelling the world.

When I was 18 I reluctantly dropped out of university with a weight below four and a half stone. I spent the next five years being refed and rehabilitated from Anorexia. At the age of 23 I tried to make a new start with a disabled person’s traineeship for a government funding body. My manager terminated this fixed-term contract after I disclosed in confidence that I was distressed and self-harming outside of work. My life then fell apart and the self-harm worsened with paracetamol overdoses. I was fortunate to meet a community psychiatric nurse who saw beyond the self-harm, encouraged my potential and need to stay busy. I volunteered at a local Citizens Advice for nine years during which time I was hospitalised for countless blood tranfusions and even sectioned on the psychiatric ward due to pressure from A&E medics for services to do something. In my early thirties, while still under the community mental health team, I came across an incredibly hard working, sound and enthusiastic vocational adviser, using the Individual Placement and Support model, who motivated me to finally contemplate a meaningful, appropriate and chosen job.

I believe the structure of work helps me now though work is inherently stressful. I never want to imply that I have done it and so should others with mental health issues. I have seen this bullying attitude amongst peer leaders who had chosen working in a supermarket or self-employed consultancy on mental health over claiming benefits which they saw as a mark of disgrace and welfare dependency. Some service users progress to working within mental health services in peer worker roles which are usually underpaid and undervalued by their NHS trusts. However, I decided to do administrative work away from mental health care, since I feel too much of my life has been lost to mental health already.

I have many friends who don’t work due to their mental health and I would always advocate for their need to be left alone by the Department of Work and Pensions (DWP) and the various organisations, which can include NHS trusts and mental health charities, acting as their agents. While the fear of being made to do ‘any’ job, if found fit for work, did propel me to act before I was forced, I don’t support this underlying threat tactic.

Apart from the benefits questions, I have been wondering whether there are unspoken disadvantages to being in work when you have ongoing mental health challenges. These disadvantages include health services seeing an employed person as recovered, the lack of support in the workplace, the inability to disclose less appealing diagnoses, for instance ‘personality disorders’, eating disorders or addictions, and the difficulty of accessing benefits support which enables you to keep working.

This week I attended a CCG organised ‘Coproduction’ workshop on local care and mental health using my annual leave so that I could speak freely. A consultant psychiatrist was the speaker representing the main mental health trust in this area. His presentation and words were: “only the most severely impaired should access secondary services.” I interrupted at this point to ask how he would define ‘severely impaired’ and if it could include people in work. The speaker said that it would not because: “they wouldn’t want to see us as they are out working providing for their families.” I pointed out that someone in work could still have a crisis, indeed could need hospital admission.  I felt a lone voice in a room of professionals where others probably agreed that all patients who can just about function should be discharged back to primary care to release capacity in the system, outing those who are the equivalent of bed blockers in hospital.

There are logistical difficulties of accessing mental health services if they decide you deserve an appointment when you work. Even the mental health services embedding in primary care operate during core work hours and may be in a town away from your place of work. Since I’m fully aware of the huge demand on specialist services, it does kind of make sense how services view someone working, even if signed off sick, as more able to fend for themselves. Perhaps there is also a mistaken belief by professionals that working is a curative therapy which then creates a lack of comprehension why someone, particularly with non-psychotic conditions, should become ill when in work. Services only want to see people short-term to work to Recovery model goals, so if you have achieved paid employment then this can in itself be regarded as marking the end of the treatment journey.

My experience of applying for Personal Independence Payment, once Disability Living Allowance ended, is that working counted against me. The medical report from my face to face assessment with a general nurse employed by Atos repeatedly said “in her social history she states that she works full-time with no specialist input.” While I scored 6 points these were on account of my eating disorder, thankfully being in a job doesn’t denote that I can eat three meals a day or prepare a simple cooked meal. The assumption made by the assessor and the DWP is that if you hold down a job then you can do all of the activity descriptors involved in daily living. I was turned down for PIP and had to challenge the decision. The short-term award I did get on mandatory reconsideration has meant that I have to go through this claiming process 18 months later, explaining all over again how I can be employed yet still find it difficult to engage with other people face to face.

If you do become more unwell while at work, whether caused by work stress or personal issues, then there may be no support to prevent your job loss. Large employers usually have an outsourced Occupational Health service but this tends to amount to advice for the employer about when the employee is likely to return to work. There is no advice directed towards the employee about how they can cope with work. The provider used by my current employer is OH Assist, which used to be a division of Atos, the private company which performs benefits assessments on behalf of the DWP. The assessment of the employee’s health and subsequent advice report is done through a brief telephone consultation. The Occupational Health Adviser may be a nurse or OT who has no mental health knowledge, leading to a short and generic report for the employer, which is more of a tick box exercise than a considered specialist opinion.  I have had to pay my private psychologist to write a report for my line manager in the hope that it may lead to reasonable adjustments and understanding of how to support me at work.

Many large employers do have an Employee Assistance Scheme (EAP) which is telephone based. My experience is that calls are short, possibly to target times of 10 minutes, unless you wish to access eight sessions of phone counselling. Since the EAP is also outsourced to a national company, there is no familiarity with the employer you work for and their policies. I was overpaid salary of thousands of pounds in error by my employer but had no way of sharing my pay slips with a phone adviser who would be someone different if I called again. The extent of the advice given during 10 minutes about my overpayment was that the employer should be ‘reasonable’. I experienced even greater stress when my employer then demanded in two threatening letters that I repay the total overpayment back in two months leaving me with a nil income for those months. In fact, the overpayment recovery deductions set amounted to more each month than I would have been paid. I had to use my annual leave to see a local Citizens Advice to figure out how to respond to the overpayment that wasn’t my fault though still needed full repayment.

Job retention support is non-existent despite the way that work is a policy priority in mental health and the Five Year Forward View.  I approached the Shaw Trust and was told that they weren’t commissioned to provide job retention and the only way they could help me was if I gave up my job to look for another. I have seen the Disability Employment Adviser at the Jobcentre and was given a leaflet for an NHS funded Improving Access to Psychological Therapies service offering six sessions of web chat and was told that Access to Work wouldn’t cover anything for mental health except taxi fares. After much internet searching, I found Remploy, funded by Access to Work, has a Mental Health Support Service. I self-referred to this service and understood that there would be six months of support. I later realised that the support was telephone based whereas I needed someone to come with me to meetings with senior managers at work. Remploy is in partnership with Maximus, which is another private company that provides benefits assessments for the DWP.

Two weeks after I self-referred, a Vocational Rehabilitation Consultant phoned me and offered the only face to face meeting I would have in six months apart from a 13 week review he said could be done in person or over the phone. He made clear that he was fitting me in on his way by train to another client. His office address is over 150 miles away from where I am based. During our meeting lasting half an hour, he asked my diagnosis and when I said it was ‘Borderline Personality Disorder’ he suggested that I was a ‘complex lady.’ He said that he had other clients with BPD but they did not self-harm and he knew how with BPD one day he may be my best friend and the next day my worst enemy. I tried to explain that I didn’t experience this perception and found such a stereotype offensive. He had emailed me a lot of leaflets produced by Mind in advance of this meeting and asked if I had read them yet. I was in crisis, attending A&E for wound repairs, so reading the leaflets was the last thing on my mind.

My personalised action plan from Remploy stated that the “reading resources were provided to help her better understand anxiety, depression and self-harm so that she can try to develop coping strategies to better manage her mental health.” He drafted a letter to my manager which I had to ask him not to send since it stated that she was the cause of my anxiety! When I gave feedback that the leaflets were too basic and his service didn’t meet my needs he replied in several emails saying:“We deal with individuals who have mild to moderate mental health difficulties who are already in employment and do not require intensive support. I feel you are not benefiting from the mental health support service (MHSS) which Remploy deliver as it provides a much lighter touch as I think you require a level of intensive support which is not designed into the MHSS as it is not designed for that purpose.”  He never suggested where this intensive support should come from. I still have to provide him with monthly updates until the end of the six month support period, even though I have withdrawn from the service.

My employer does have Mental Health First Aiders (MHFAs) who can be approached in the same way that an employee could ask for physical first aid if they had an accident. These MHFAs do have two days of training. I believe that staff with the right qualities training as MHFAs can be a helpful resource in the workplace though their role is to listen, signpost but not to give advice. However, it isn’t easy to approach MHFAs you know as colleagues. While the conversations are meant to be confidential I do have a doubt about whether I may regret being open if later interviewed for a promotion by a colleague who is also a MHFA and may see me in a different light. I have not managed to tell any of my colleagues about my diagnosis as I am sure it would damage my career prospects. There are so many negative articles online about BPD that a manager would only have to look at the wrong Walking on Eggshells type web page to form a judgement that the employee was a problem.

In several places of work I have heard colleagues use what they call ‘gallows humour’ about customers, such as saying those who self-harm seek attention, that it was a waste of resources that an ambulance helicopter was called out for a resident who had taken an overdose and that they wished one of their clients would get run over by a car as he served no useful purpose as a drug addict. I still hear where clients are called ‘manipulative’ as though this is definitive. Even though the colleagues are not talking about me, I start wondering what statements they would make if they knew that I was a frequent user of A&E, covered in scars under my long sleeved shirts and trousers. I want to educate them on the distress behind mental health issues but don’t want to reveal too much about my own history that they either feel sorry for me or form a different opinion other than one based on my strong work ethic.

There is the isolation of being single and in work (I have no family to provide for despite what was suggested by the speaker at the workshop). I have no-one to turn to after a long day in the office where I may have experienced conflict, stress or bad news, for instance there is an imminent restructure. It takes me several hours in the morning to psych myself up to go to work and once home I have no energy left. I eat something simple like cereal, having snacked for most of the day due to my anxiety, I then phone my surviving elderly parent and go to bed. The events at work and whether I said the right thing or have forgotten any task go round in my mind inhibiting sleep. I know that the next work day offers more of the same routine, perceived criticism, uncertainty and self -doubt. Working has created distance from a few friends who think that it is alright for me now I have work and don’t have to worry about work capability assessments. Government policy pitches disabled people against each other. We compare ourselves and who needs the rationed resources more since benefits and services were cut as part of austerity measures. I also feel I have no energy to talk to these friends about their encounters with mental health services when I just need total rest after forced company in the office. I don’t feel like using the computer or answering the phone since I fear I will have no resources left to go into work again.

I often feel like a disaster survivor unable to tell my colleagues what has happened to me through iatrogenic and personal traumas. My world is clearly not theirs. I share in their news of families, childcare arrangements, children’s exam results and their own career promotions. I don’t say how unhappy and empty I feel inside or that I won’t see anyone over the weekend as otherwise I wouldn’t recover to see them again on Monday.

If work is good for you, it should be good to you as well. Work needs to be with a supportive employer, have a benefits package with well funded employee wellbeing resources, open minded colleagues and local NHS and voluntary sector services that don’t exclude the ‘high functioning.’ There should be a raft of supports that are concerned about job retention and not just a job placement, job done approach. Voluntary work should be valued as a meaningful and important part of life for those whose mental health condition means they shouldn’t be pressurised into work to targets or to keep the welfare bill down. We need to work together as allies, those in and out of work, to make sure our voices are heard and that work is chosen, decently paid, healthy and fair.

Hey Binners, Let’s Write To The UN!

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We would like to crowdsource from you lovely binners a submission to Philip Alston UN Special Rapporteur on Extreme Poverty and Human Rights, who is gathering evidence in UK.

>DEADLINE Friday 14 September at 18:00 GMT Respondents are requested to limit their comments to a maximum of 2,500 words. Reports, academic studies and other types of background materials can be attached as an annex to the submission. All input will be treated confidentially by the Special Rapporteur and his team<

Humble suggestion: we take the framework of- our political economy creates and maintains poverty, poverty incites/exacerbates mental illness, with NHS, Local Authorities, and DWP assessing away need in order to make cuts the ‘safety net’ is gone (Police being ‘service of last resort’). So treatment and support is also failing, IAPT is a joke but it produces nice metrics for conferences! Professional response has been (apart from some honourable exceptions) poor & leaving us to fend for ourselves to get care or benefits. All underlined by inequality of- ethnicity, income, power, gender, class etc

To give us time to collate and arrange into a submission all comments etc will be collected by 10th September.

So please, have at it, tell the UN what you want them to know about Mental Health in the context of Extreme Poverty and Human Rights in the UK! Email your wondrous words (preferably not more than a few hundred) to recoveryinthebin@gmail.com marking them with the subject line UN Alston

Open Letter To Some Of Those Attending The Global #DisabilitySummit #NowIsTheTime

Open Letter to some of those attending the Global Disability Summit

To:

Lenin Moreno, President of Ecuador

Gabriela Michetti, Vice President of Argentina

Sophie Morgan

20 July 2018

We are writing this open letter to you on behalf of Deaf and Disabled people across the UK concerning your involvement in the global disability summit being co-hosted by the UK government in London on 23 and 24 July.

We are strongly in favour of international support that improves the lives of Deaf and Disabled people across the world and welcome co-operation between States that lead to stronger human rights laws and protections. We particularly support the building of international solidarity and links directly between Deaf and Disabled People, our organisations and campaigns.

However, we have the following concerns regarding the July summit:

The role of the UK government in co-hosting the event. Following an unprecedented investigation carried out by the UN disability committee under the United Nations Convention on the Rights of Persons with Disabilities (UN CRPD), the UK was found responsible for grave and systematic violations of Disabled people’s rights due to welfare reform. The findings of their investigation, published in November 2016, were and continue to be entirely dismissed by the UK government. In August 2017 the UK government was routinely examined under the UN CRPD and again the UN disability committee expressed their deep concerns regarding the UK government’s failure to understand the Convention, the impact of their policies and failure to recognise them. Again the UK government said they disagreed with the findings of the Committee. The involvement of the UK government in co-hosting the summit therefore undermines any aims of the summit linked to strengthening Deaf and Disabled people’s rights under the UN CRPD. Instead it provides a platform for them to showcase to other States how it is possible to get away with ignoring those rights when it comes to your own citizens.

The UK government’s use of its international work to cynically deflect from criticisms of their disability record in the UK. On a number of occasions when government ministers have been criticised for implementing policies with an adverse impact on Deaf and Disabled people, they have cited the poorer conditions of Disabled people in other countries. This represents a misunderstanding of the UN CRPD which is about the progressive realisation of rights. The UN disability committee have such concern about the situation in the UK because it represents a serious and dramatic retrogression of rights, described by the Chair as a ‘human catastrophe’. In deflecting attention from their record in the UK, the Government clearly intend to more easily continue their punitive policies targeted at Disabled people and the poorest members of society. There is now overwhelming evidence, evidence which the UN disability committee considered, that prove the brutal impacts of these policies. It would be a betrayal to all those suffering under them not to raise concerns about attempts such as use of the global summit to divert attention and opposition to those policies.

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The suitability of the Government of Kenya as co-hosts given their abuse of the rights of LGBTQI+ people, many of whom develop lifelong impairments as a result. LGBTQI+ people in Kenya are routinely banished from their families, denied work and accommodation, imprisoned and persecuted. They face severe barriers to forming and maintaining relationships and to living as a couple, the ‘Right to Family Life’ that every human is promised. This results in widespread damage to their mental and physical health, creating impairments where none previously existed. This is reflected in the high level of asylum applications to the UK from LGBTQI+ asylum seekers from African countries.

Despite their experiences, the majority are then refused asylum in the UK and forcibly returned home, where many disappear or are murdered. Just this April, President Kenyatta said that LGBT rights are “not acceptable” and not “an issue of human rights”. The Kenyan Government has also claimed this is a non-issue for Kenyans, and no doubt would argue that it has nothing to do with the Summit. However, if you are Kenyan or Ugandan and are lesbian, gay, bisexual, trans, queer or intersex, it is an issue that completely dominates and dictates your life. For many Disabled people from Kenya, it is the reason they developed an impairment in the first place. Under the UN CRPD, the Kenyan government also has an obligation to protect the rights of disabled people who are LGBTQI+.
We appreciate that you may not have had this information when you agreed to involvement in the summit and would be happy to meet to discuss our concerns. Please do not hesitate to contact us with any questions or for further information.

Yours sincerely,

Disabled People Against Cuts dpac.uk.net

Sisters of Frida sisofrida.org

Alliance for Inclusive Education allfie.org.uk

Inclusion London inclusionlondon.org.uk

Mental Health Resistance Network mentalhealthresistance.org

Reclaiming Our Futures Alliance rofa.org.uk

Recovery in the Bin recoveryinthebin.org

RITB Statement of Support

RITB (Recovery In The Bin) members have intersecting identities and social positions such as BME/LGBTQIA+/people in receipt of social security. We are a group of people marginalised in many ways, not just because we are mental and disabled by society. We especially wish to stand in allied solidarity with these groups and condemn racism, transphobia, homophobia, sexism & scrounger rhetoric. We call on liberation movements to stand in solidarity with us.

If you wish to add your name or org to this statement please email the details to

recoveryinthebin@gmail.com

Julie Gosling
– Making Waves
– Nottingham MAD Network

Akiko Hart, Mind in Camden

Andy Fugard, Birkbeck, University of London

Stan Papoulias, King’s College London

Jhilmil Breckenridge, Bhor Foundation, India and PhD Researcher at University of Central Lancashire

Gary, mental health service survivor

Helen Hewitt

Richard Ingram, West Coast Mental Health Network

Jayasree Kalathil, Survivor Research, London

Jayne Linney, Disability & Equality Activist

Dr Annie Hickox, Consultant Clinical Neuropsychologist

Rachel Yates, Central London BAPCA Group

Dolly Sen, mental health researcher and artist

Professor Bee Scherer, Director of the Social Justice Research Center INCISE, Canterbury Christ Church University

Suzi Mackenzie, Counsellor with a commitment to social justice

Jen Kilyon, Activist and campaigner for compassionate mental health services

Clare Knighton, Peer Support Worker

Melanie Davis, Mind in Camden

Alison Cameron, Survivor, activist and advocate

Helen Spandler, editor, Asylum magazine

Debbie Hamilton Newcastle Australia

Joanna Landeryou

Tom Wood, Mayday Self Help Groups

Alisdair Cameron, Launchpad Team Leader, ReCoCo co-creator

Mark Brown @markoneinfour

Jay Watts, Alliance for Counselling & Psychotherapy

Christian Kerr, mental ill health experiencer, social worker

Mirabai Swingler

Dina Poursanidou, Asylum magazine collective

​Derry Hunter. Survivor & Agitator. Recovery Wirral

Eleni Chambers, Survivor, researcher and activist

Esther McVey and the Samaritans: Psychologists for Social Change and Recovery in the Bin respond

Psychologists for Social Change and Recovery in the Bin response to news of Esther McVey, Secretary of State for Work and Pensions’, position on the Samaritans’ Advisory board.

As a group of psychologists (Psychologists for Social Change) and service users (Recovery in the Bin) we are deeply concerned at news that Esther McVey has a role on Samaritans’ advisory board and believe that holding this along with her position as secretary of state constitutes a conflict of interest.

We think a position advising the Samaritans is incompatible with the beliefs she has been shown to hold based on her record in government. Esther McVey is a conservative government minister with a long record of voting and working to reduce support for those requiring welfare benefits. She has consistently voted against any increases in welfare benefits, including for people who are unable to work through illness and disability and, over a three year period, supported a reduction in total welfare spending 29 times. In addition she has consistently voted to reduce housing benefit for those social tenants deemed to have excess bedrooms (‘the bedroom tax’).

People experiencing financial difficulties are at an increased risk of developing mental health problems (Kiely et al., 2015), being associated with self-harm (Barnes et al., 2016) and depression (Mirowosky & Ross, 2001). Increases in suicide rates have also been associated with times of economic crises (Branas et al., 2015). As such the Samaritans have become something of a lifeline for people suffering the consequences of the reduction and removal of crucial welfare support. It is frequently recommended by stretched Mental Health Services for whom crisis services may be minimal or non-existent, meaning the Samaritans can sometimes be the last resort for people who may feel suicidal.

Representatives of Recovery in the Bin, a group of mental health service users, have described this as an issue of trust and respect, experiencing her decisions and their consequences as abusive and detrimental to their mental and physical health. They drew attention to the fact that the United Nations have found the UK government and particularly the DWP guilty of ‘grave & systemic’ human rights abuses which have caused a ‘human catastrophe’ for disabled people. Therefore they state it is wrong to have a human rights abuser on a charity board, especially when that charity is supposed to help people who are harmed by her decisions.

Representatives from Recovery in the Bin noted that benefit cuts are a leading cause of crisis for mental health service users. Service users and more who are now discharged through service cuts feel betrayed by the Dept of Work and Pensions who have been shown to disproportionately discriminate against mental health claimants as court cases demonstrate. They are also the sole group targeted for employment as a “health outcome” which amounts to sanctions, workfare and removal of benefits.The insertion of Job Centre Plus into libraries and GP surgeries leave service users feeling that there are virtually no safe spaces left from the very government department they are affected by. Some will not not feel able to use the Samaritans until this additional imposition is rectified by the removal of Esther McVey.

UBI (Universal Basic Income): The Good, The Bad, and The Ugly.

the-good-the-bad-and-the-ugly-1Universal Basic Income (UBI) has one intrinsically good feature: it ends the harmful idea that human worth is tied to a person’s ability to labour and produce profit. Instead it says every person is intrinsically valuable and everyone deserves the necessities to live and take part in society.

After this however the Devil is in the detail. UBI is a tool and tools can either help or harm. Unfortunately too much discussion of UBI neglects the essential details that determine if the versions of UBI being proposed is harmful or helpful. So here briefly are the necessary features of UBI that are required for it not to harm people:

One question to ask yourself is: Would I be content to live on the level of UBI I am proposing? Unless the answer is Yes, you are proposing a UBI that is regressive and harmful.

1. Level
UBI must be set at a level that provides for an income that allows a person to live on it, in dignity and inclusion with society. In the UK the Joseph Rowntree Foundation (JRF) estimate [1] the minimum income for a single person to live in society is £17K. Currently Job Seekers Allowance (JSA) is £73, this is not enough to live on and anyone proposing this level will be harming people with their UBI ideas. Unemployment benefit has been devalued over the previous 4 decades, if we were to have it at the level of proportion of earnings it was 40 years ago, it would be £140 plus payments for rent and disability on top. So under the subject of level it must also be asked- is UBI to be parallel to existing social security systems, or a replacement? If a replacement if must also feature discussion of how housing is to be provided, regulated, and paid for.

2. Funding
UBI must address ongoing inequality and seek to reduce it over time, this is best achieved by funding it through a progressive and just tax regime. Currently the global consensus is against taxation in general and particularly against a progressive system. In the UK alone there is a tax gap of circa £120Bn [2] which is not being addressed and the current effect of the overall taxation system has lessened in its progressive effects to being almost flat in that regard [3]. Any UBI proposal that does not address how this situation is solved will be regressive and harmful.

3. Social Justice and Human Rights
UBI must pay additional amounts to people whose everyday living costs are greater than the average, generally this means those with children or caring responsibilities and deaf, chronically sick, and disabled people. Any UBI that does not build in additional support for these groups will be regressive and harmful.

Any discussion of UBI without a discussion of these three features will necessarily be incomplete, and thus regressive and harmful.

Most versions of UBI being proposed or tested fail these three criteria and this failure is not being discussed. This makes the current UBI movement extremely dangerous and more akin to proposing a subsistence subsidy of labour that is to benefit business, and not a system to nurture human and planetary welfare. It would perhaps be better to look at more profound and holistic analyses of our political and social economies and how to turn those from being oppressive into nurturing and just systems that will avoid our extinction as a species. Have a Doughnut [4]?

[1] https://www.jrf.org.uk/income-benefits/minimum-income-standards

[2] http://www.taxresearch.org.uk/Documents/PCSTaxGap2014Full.pdf

[3] https://www.equalitytrust.org.uk/how-regressive-our-tax-system

[4] https://www.kateraworth.com/doughnut/

Also see https://recoveryinthebin.org/2017/06/25/the-neoliberal-writing-on-the-wall-ontarios-basic-income-experiment/

https://recoveryinthebin.org/2018/07/31/on-universal-basic-income-be-careful-what-you-wish-for/

UN Special Rapporteur on extreme poverty & human rights Philip Alston’s very good overview of UBI http://ap.ohchr.org/documents/dpage_e.aspx?si=A/HRC/35/26

And a treasury of UBI links:

https://ocaptoronto.wordpress.com/2017/04/12/what-basic-income-means-for-disabled-people/

http://www.telesurtv.net/english/opinion/Basic-Income-as-a-Neoliberal-Weapon-20170217-0009.html

http://www.socialistproject.ca/bullet/1350.php#continue

https://www.jacobinmag.com/2017/01/ubi-finland-centre-party-unemployment-jobs/

https://www.opendemocracy.net/neweconomics/universal-basic-income-is-a-neoliberal-plot-to-make-you-poorer/

https://www.jacobinmag.com/2016/01/universal-basic-income-switzerland-finland-milton-friedman-kathi-weeks/

https://jacobinmag.com/2017/12/universal-basic-income-inequality-work

https://londongreenleft.blogspot.co.uk/2017/11/universal-basic-income-too-basic-not.html

https://www.policyalternatives.ca/publications/monitor/redistribution-through-basic-income

https://dpac.uk.net/2017/09/why-dpac-has-concerns-about-a-neo-liberal-basic-income/

https://www.jrf.org.uk/blog/universal-basic-income-not-answer-poverty

https://dpac.uk.net/2018/06/solution-or-illusion-the-implications-of-universal-basic-income-for-disabled-people-in-britain/